Restraint, Seclusion and Segregation (RSS) Project

Restraint, Seclusion and Segregation (RSS) Project

Have you or someone you care for been held, restrained, stopped from doing something or physically controlled by staff or carers? Or kept away from other people while in a care setting?

Tell us your stories and help make care safer.

Advonet and CHANGE are working with the Care Quality Commission (CQC), independently of them, to collect your stories about restraint, seclusion and segregation (RSS).

What does the project do?

We want to listen to people who have experienced Restraint, Seclusion and Segregation (RSS for short) in healthcare and their families and carers. RSS is used in hospitals, Assessment and Treatment Units (ATU), and residential care homes.

The Department of Health have asked the CQC to look at RSS and how it is used. This is because RSS can be upsetting and the Department of Health want to change the rules to make care safer and better for everyone.

CQC have asked Advonet and CHANGE to ask people with learning disabilities, autism or mental health problems to tell us about their experiences of RSS. They want to know what happened to them and why, how they feel about it, and how they think it could be avoided or made safer.

The project’s aims

Hearing your stories

User-led group to lead the project

Meet with the Expert Advisory Group

Firstly, the project wants to attract people with lived experience of RSS to tell their stories. We will be able to send a consent form and guiding questionnaire to anyone who wants to be involved, and we can invite people to be interviewed (with support if needed) or participate in whatever other way they prefer.

The consent form and questionnaire will be available soon.

The project aims to recruit around 8-12 people with lived experience of RSS to sit on our user-led group and steer the independent report. They will meet 3-4 times throughout October and November, to look at stories, discuss themes, and make recommendations.

If you would like to join the group or more information on how to get involved, we will have information out soon.

The RSS Project aims to offer people with lived experience of RSS the opportunity to attend meetings of the Expert Advisory Group, who are working with the CQC on the review of RSS.

We will support people to travel to London and tell the panel their stories directly.

Who is the project for?

The project is for and led by people who have experienced RSS before and for parents/carers/partners of people who have. This is a project that is for people across the country that have experienced RSS before and want to tell their stories and see changes made.

Share your story in our questionnaires

Our project has two questionnaires where you can share your story anonymously. One is for people who have experienced RSS. The other is for parents/carers of people who have experienced it. To take either questionnaire, please click on the relevant button below.

There is also a PDF version, which you can download by clicking on the third button. Once completed, please email it to

Get involved

If you would like to be on the user-led group or share your story, you can contact us:


We have links to the CQC’s restraint review and resources about the project and how to get involved. Please click on the buttons below to read each one.

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